There are currently six drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS and its symptoms: Qalsody, Radicava, Rilutek, Tiglutik, Exservan and Nuedexta. Please consult your doctor or health care professional about which ones may be right for you.
We’re committed to providing people living with ALS and their families and caregivers with the most comprehensive and current information and resources; caring support and services to help them live their lives to the fullest; and top-quality medical care at our ALS Association Certified Treatment Centers and Clinics. Learn more.
Hearing from your doctor that you’ve been diagnosed with ALS is often difficult and overwhelming. Telling those you love about your diagnosis can be just as hard. When do you tell them? How do you tell them? What should you say? The most important thing to remember is you’re in control of how and what you share. Learn more.
Being diagnosed with ALS can seem overwhelming. It’s completely natural to feel shocked, scared, sad, angry and a long list of other emotions. Along with allowing yourself to feel all of those emotions, it’s important to take steps to accept and learn about your diagnosis and begin living life with ALS. But what should you do? Where should you start? Learn more.
The Medicare program at the Centers for Medicare & Medicaid Services removed noninvasive ventilators from competitive bidding for durable medical equipment. The decision will keep the devices out of competitive bidding for at least three years and is a victory for ALS advocates. The ALS Association and its partners have led an intense lobbying campaign against competitive bidding for noninvasive ventilators for more than a year. The Medicare program cited COVID-19 in announcing the move.
With congressional leaders scheduled to begin work on additional stimulus legislation in response to the COVID-19 pandemic, The ALS Association is continuing to push to include protecting access to noninvasive ventilators (NIV) and to making sure people with ALS can access their Social Security Disability Insurance (SSDI) in the coronavirus response packages.
Like most grandparents, Lesley Krummel took great joy in picking up her grandkids. And that loss is one of the most challenging aspects of her ALS progression.