Existing evidence supports the conclusion that people who’ve served in the military are at a greater risk of being diagnosed with ALS and dying from the disease than those with no history of military service. Learn more.
We’re dedicated to providing resources for military veterans living with ALS, and funding research to understand the link between military service and ALS. Learn more.
Being a family caregiver, while a fulfilling role, can consume a great deal of physical, mental and emotional energy. That’s why respite care is so important. It gives caregivers like you an opportunity to create a plan of care for themselves – something that’s often overlooked. Learn more.
As a caregiver for someone living with ALS, you have a very important role. The everyday tasks you do for your loved one are often time-consuming and require a great deal of effort. If you don’t learn to recognize that certain responsibilities and expectations can take their toll on you, regardless of whether you’re doing them out of love, you may find yourself headed down the path of burnout. Learn more.
ALS Care Connection is a simple online tool that helps organize the community of people who want to help. It coordinates their efforts to more efficiently support families impacted by ALS.
The best support often comes from those who’ve walked the path before you. We asked some caregivers and people living with ALS to share their thoughts and advice, so you can be assured you aren’t alone. Learn more.
When you’re providing around-the-clock care for a person with ALS, stress and burnout are to be expected. When added to the stress of everyday life, work, and family, caregiving can be overwhelming. Luckily, there are a number of strategies and techniques that you can use to help manage your stress and communicate your needs. Not to mention, we can help connect you with a supportive community of ALS caregivers and patients that can be a helpful sounding board and help you solve problems.
Being a caregiver for someone living with ALS isn’t easy. Often, you're so busy supporting your loved one that your own physical or mental health takes second priority. It’s important you get the support and assistance you need so you can care for your loved one to the best of your abilities. Learn more.