This manual discusses what aspects of that task people with ALS may have difficulty with and provides possible ways to make the challenges smaller or to compensate by using adaptive equipment.
An advance directive is a legal document used to instruct others about your health care wishes. It acts as a guide for your loved ones and health care providers to make health care and treatment-related decisions on your behalf, should you become unable to convey them due to illness or incapacity.
Be recognizing the signs of fatigue, knowing which factors worsen symptoms, and learning how to conserve energy, persons with ALS can greatly improve their quality of living.
While staunchly supporting the right of people with ALS to make health care decisions affecting their life and death, The ALS Association believes just as strongly in the right for people to be fully informed about ALS including symptom management and comfort measures as ALS progresses.
The ALS Association prepared the Patient Bill of Rights to inform people living with ALS about their rights related to health care and health plan insurance coverage.