We’ve developed several materials as communication and educational tools to help inform medical providers, as well as provide pertinent insurance and family information. Access them now.
This booklet will provide a helpful overview of the multidisciplinary team approach, what one can expect during a typical clinic visit, as well as additional options for care and support from providers outside of the core care team.
It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.
This resource guide is the result of many years of clinical social work practice and research with families, children, and youths affected by neurological illness.
An ALS diagnosis brings a lot of changes, including financial ones. Medical bills increase, income often decreases and there are questions about everything from insurance coverage to estate planning. One thing that doesn’t change is the government requirement to pay taxes. If you have an income, you have to file an income tax return. Learn more.
The costs of medical care and assistive technology can be staggering, even if you have health insurance. If you don’t have health insurance, though, it can be difficult to know where to start. Thanks in large part to The ALS Association’s advocacy, the Medicare wait time eliminated. It isn’t easy to navigate the Medicare system, but it’s important that people living with ALS start this process as early as possible. Learn more.
Medicare is the national health insurance program for which all Social Security recipients who are either over 65 years of age or permanently disabled are eligible. Thanks to tireless ALS advocacy work, this incudes people living with ALS, regardless of age. People living with ALS who receive Social Security Disability Insurance (SSDI) are eligible for Medicare. There’s much to know about what is and isn’t covered. Learn more.