Being the primary caregiver for a loved one living with ALS can be stressful. In addition to being on call 24/7, you may have additional responsibilities, like working a full- or part-time job and taking care of children. Caregivers are often so busy supporting their loved ones that their own physical or mental health takes second priority. We want to support you with tips, hints, information and in-depth resources about caregiving, support groups, practicing self-care, coping with burnout, respite care and more. Learn more.
Feeling sad or scared after an ALS diagnosis is completely natural. Some people have an easier time dealing with these emotions than others. There is no right way to process the impact of an ALS diagnosis. Learn more.
Infusion therapy involves the administration of medication through a needle or catheter into the body. Home infusion is a safe and effective option available to hospital patients. It involves the administration of intravenous medications – through a needle or catheter – in a patient’s home or other alternate treatment setting. Learn more.
Most people living with ALS will experience difficulties with speech and movement as their illness progresses. Some will ultimately lose the ability to speak and use their hands, which can be both frustrating and emotionally devastating. Learn more about devices that can help with communication.
A wide range of equipment and technologies can improve mobility and help manage ALS symptoms as the disease progresses. These devices can make it easier for people living with ALS to get around their homes, speak and perform day-to-day tasks like bathing and going to doctor’s appointments—making life easier for both the person living with the disease and their caregiver. Learn more.
One of the common symptoms of ALS is a gradual weakening and loss of control of the muscles in the mouth and throat. These muscles are known as “bulbar muscles,” and some of the “bulbar symptoms” of ALS include difficulty speaking or swallowing. Learn more about managing speaking and swallowing when living with ALS.
As ALS causes muscles in the chest to weaken, breathing can become difficult. In fact, respiratory problems have long been a leading cause of death for people living with ALS. But there are things you can do to improve respiration and manage breathing problems as they occur. Examples include special techniques and mechanical aids that can help with breathing and coughing. Learn more.
Decreased mobility is a challenge faced by every person living with ALS. However, you can take certain steps throughout each stage of ALS to improve your mobility. Your caregivers can help with some of them. Learn more.
Good nutrition is important for everyone. It can be challenging for some people living with ALS to maintain a healthy diet due to chewing and swallowing difficulties. Learn more.