Every 90 minutes, someone is diagnosed with the disease, and someone passes away from it. ALS affects men and women, most often between the ages of 40 and 70. Most cases occur without family history, but around 10% are due to a mutated gene.
On March 5, The ALS Association launched a weekly podcast, Connecting ALS, that will shine a national spotlight on the people, research, and policy issues central to the fight against ALS.
We are getting enthusiastic feedback and questions about our partnership with Project ALS to fund a clinical research project for jacifusen, an experimental therapy being developed at Columbia University’s Eleanor and Lou Gehrig ALS Center for FUS-associated ALS. We thought it would be helpful to describe the strategy underlying the project.
This national research project was created to identify all ALS cases in the USA, to help better understand who gets ALS and what factors affect the disease.
We advocate for legislative policies that will support the finding of treatments and a cure for ALS, to empower people living with ALS to live their lives to the fullest. Learn more.
The ALS Association works every day to fight for new treatments and a cure for ALS and improve the lives of people with ALS and their caregivers. That’s why we’re at the forefront of public policy. Learn more.
For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC) and the World Health Organization (WHO).
Our mission is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our leadership team is essential in achieving this mission.
Two days before her birthday in January 2018, Susan Hoerber was diagnosed with ALS. “I was symptomatic for about four years. I knew there was something terribly wrong,” she said. Susan first noticed her symptoms when she struggled to hold a fishing pole. “I was an avid fisherman and outdoors person,” she said. “That's the first time I got kind of scared and I went to the neurologist.”