The CReATe Consortium, an NIH-funded Rare Disease sClinical Research Consortium, in partnership with the ALS Association, is pleased to announce this request for applications (RFA) to support the discovery and/or validation of biomarkers for ALS or a related disorder.
Since 2019, Kevin Heller -- a West Point graduate and U.S. Army veteran who was diagnosed with ALS at the age of 58 -- and his team #GiveEmHeller, put their hearts and souls into the nation’s top-grossing ALS fundraiser, the Napa Valley Ride to Defeat ALS and Walk.
Ionis Pharmaceuticals announces pivotal patient trial of antisense therapy following aggressive joint research effort led by the nonprofits The ALS Association and Project ALS.
Recent changes at the Centers for Medicare & Medicaid Services (CMS) will enable people with ALS to receive critical services provided by speech therapists, normally provided at in-person visits, via telehealth during the pandemic. These services include clinical care for swallowing and speech-generating devices - many challenges people living with ALS are faced with every day.
The Board of Trustees of The ALS Association unanimously supports our CEO Calaneet Balas, who has served the global ALS community with distinction, integrity, and compassion.
Executive Director John Hedstrom of The ALS Association Massachusetts Chapter offers a comprehensive update about the goings on with local events, care services, and the promise that April brings for the entire Commonwealth.
The ALS Association is now accepting applications for The Jane Calmes ALS Scholarship Fund for the upcoming 2021-2022 school year. Established in 2019, the scholarship is designed to support post-high school education for students whose lives have been impacted by ALS, with recipients receiving up to $5,000 per year to help cover the cost of education.
The 2021 CEO Soak: Massachusetts Leaders & Educators Edition, a fundraising event hosted by The ALS Association Massachusetts Chapter, will be held at the Rings Fountain on the Rose Kennedy Greenway in Boston, Massachusetts on Thursday June 10, 2021.