Sophia Harding is a Phone Friend Volunteer with The ALS Association Florida Chapter. She volunteers in honor of her great-grandfather who was the first chairman of The ALS Association.
Recent changes to Medicare will enable people with ALS to receive services from speech language pathologists via telehealth through the end of the COVID-19 pandemic. These services include clinical care for swallowing and speech-generating devices - many challenges people living with ALS are faced with every day.
On Wednesday, May 5th, ALS Stakeholders will be having a virtual, “Day of Action” to reach out to their policymakers to tell their stories. We hope you will take a moment to hear from them and find out more about how you can help.
This week the Lightning Foundation and the Lightning Community Heroes program honored Gary Dassatti for being a courageous, selfless, and noble leader who has championed the fight against ALS
Sheely’s Furniture and Appliance has donated $11,463 to the ALS Association Northern Ohio Chapter, the result of its largest quarterly charitable effort ever.
May is ALS Awareness Month, and The ALS Association Alabama Chapter is creating awareness and understanding of this devastating disease by bringing attention to the needs of people across the state who are living with ALS. The Alabama Chapter is launching a new awareness campaign; ‘Every Moment Matters'
Amylyx Pharmaceuticals, Inc., a pharmaceutical company focused on developing new treatments for amyotrophic lateral sclerosis (ALS), Alzheimer’s Disease and other neurodegenerative diseases, today announced that long-term survival data from the CENTAUR trial of AMX0035 in patients with ALS were selected for an oral presentation in the Contemporary Clinical Issues Plenary Session on April 19 at the 2021 American Academy of Neurology (AAN) Annual Meeting. The meeting is being held virtually on April 17-22.
“I tell people all the time, ‘We’re in an impossible situation,’” Tyler’s wife, Cassi, said, “but the amount of help and support that we’ve had for a lot of people has made it not so terrible.”
Saturday morning, hundreds in the Jacksonville-area community did what they could to strike back at ALS by taking part in the ALS Parade of Hope, which took the place of the annual Walk to Defeat ALS this year.