On May 25, 2021, representatives from the FDA were on hand to hear from the ALS community on its urgent need for expedited access to experimental therapies.
Later this month, the ALS Association will host a virtual session focused on the urgent need for timely access to new therapies. Leaders from the U.S. Food and Drug Administration (FDA) and industry companies will listen to people living with ALS speak directly about their expectations for their experiences with the disease and how important it is to have timely access to therapies that have the potential to provide incremental benefit in improving how people feel, function and live.
To help empower kids in the fight against ALS, The ALS Association is celebrating the third annual ALS Youth Action Day on Saturday, May 15. It’s a day where kids across the country can take the ALS Youth Challenge and use the power of their creativity to help raise awareness and critical funds that help researchers around the world look for treatments and a cure while enabling people with ALS to live longer, higher quality lives.
The story of BrainStorm Cell Therapeutics’ NurOwn is a portrait of the inherent challenges in developing an effective treatment for one of humanity’s most elusive diseases, amyotrophic lateral sclerosis (ALS). It is also a cautionary tale for other therapeutic hopefuls in the space.
May is ALS Awareness Month and The ALS Association Rhode Island Chapter wants to create awareness and understanding of this devastating disease by bringing attention to the needs of people with ALS in Rhode Island. The Association is encouraging people throughout the state to fight ALS by supporting the chapter’s 24th Annual Evening of Hope taking place virtually on May 20th.
Gay Valimont moves her son, 8-year-old Eli, from his wheelchair to his bed.
Through the filtered light of the sheer curtains, his bright orange and blue-striped bedroom nearly glows in the quiet of late morning. In this process of climbing back into his unmade bed, Eli belches.
Recently, former Chicago Bear Steve “Mongo” McMichael announced to Chicago he had Lou Gehrig’s Disease. His diagnosis shocked the sports world as well as his football fans and the city that #76 calls home.