The ALS Association Florida Chapter recaps fiscal year 2020-21 by discussing accomplishments made that drive forward our vision and some fundraising/event downfalls due to COVID-19.
If you mean the condition where Zoey hears and sees people dancing and singing to express their innermost feelings, then no, that is not a real identified medical condition. However, if you are referring to the progressive bulbar palsy (PBP) that her TV father died from, then yes, that is a real condition.
A group of fraternity members spent their weekend giving back to the community by clearing snow for a man with ALS who recently lost his ability to walk.
The Food and Drug Administration told Brainstorm Therapeutics that rejiggered data from a negative clinical trial does not support the submission of a stem cell therapy for patients with amyotrophic lateral sclerosis, or Lou Gehrig’s disease, the company said Monday.
While local conditions for events vary state by state, the priority is the safety and well-being of people with ALS, their families and caregivers, and our volunteers and staff. So while Walk to Defeat ALS® events may look a little different from place to place, the ALS community will creatively come together safely in local markets to honor a loved one with the disease, to remember those who have passed, and to raise awareness and critical fundraising support for the fight against ALS.
On the one year anniversary of COVID-19 shutting down the world, Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to update the local community on the Chapter's ambitious goals and an exciting new event.