The love story starring Mark and Jan Herwaldt is one for the books.
That’s because it is not just about the relationship this Sugar Grove couple share after 33 years of marriage, now that she has become her husband’s primary caregiver as he battles ALS.
ALS Focus recently launched its third survey, gathering data from ALS caregivers to identify the unique needs and challenges of ALS caregiving. Responses to this survey will help translate the caregiver experience into action and influence ALS programs and policy decisions. ALS Focus Director Dr. Sarah Parvanta detailed the questions her team is asking in the current survey during a recent episode of Connecting ALS. A portion of that conversation has been edited and condensed below.
The Marcia LaRiche Scholarship Fund can assist dependent sons and daughters of parents who have been diagnosed with Amyotrophic Lateral Sclerosis (ALS) living in northeast Ohio finance their education at a postsecondary institution of their choice.
Being a caregiver for someone living with ALS can be a full-time job. It’s sometimes rewarding and sometimes stressful, but usually somewhere in-between. Support from the VA, The ALS Association and other organizations is available to help you not only provide care for your loved one, but also remind you to care for yourself. Learn more.
David Tomasso and his family are raising money for The ALS Association Florida Chapter while running the virtual Disney Marathon! To support his efforts, go to TeamTomo-FL.com to make a donation. In the words of Jerry (living with ALS), let's make that $26,200 for everybody fighting ALS, a terrible, terrible disease.