Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to the Massachusetts community offering thanks for support throughout the trials of 2020 and urges participation in the Chapter's 2021 event season. His letter also details how folks can attend the Walk to Defeat ALS either in person or virtually.
The ALS Association Northern Ohio Chapter is working to fight ALS on every front. Whether is it through our care services programs, advocacy on their behalf, or funding the most promising research, we fight for our constituents daily. We gratefully acknowledge those companies listed below who help make our work possible through their commitment to supporting our mission.
The physical impact of living with ALS presents multiple challenges for those diagnosed and their families as the disease progresses. With the help of innovative technologies, some facilities around the country are finding creative ways to do whatever it takes to make ALS a livable disease.
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
Taking the time to understand the disease’s progression and make plans to deal with the physical impact can help ease the burdens faced by people living with ALS and their caregivers, helping them live longer, stronger, more independent lives.
Our ALS Certified Centers and clinics around the country are committed to doing whatever it takes to provide the best possible multidisciplinary care and support for people living with ALS and their families. Their dedicated teams of healthcare professionals are specially trained to address their patient’s needs, allowing them to receive care from each discipline during a single visit. Recently we caught up with Angel Preece, registered nurse and clinic coordinator at The Neuromuscular Center at Hospital for Special Care, ALS Center of Excellence, in New Britain, Connecticut and she shared what it is typically like to visit their clinic, interact with her team and receive collaborative care from numerous clinicians during one appointment.
We recently spoke with Nishal to learn more about him and his unique project focused on providing an assistive communication device for people with severe speech and motor impairment due to ALS using an intracortical Brain Computer Interface (iBCI).