In this presentation, lead investigators from the BrainGate team will describe the advances made in the field of BCI technology and the ongoing clinical trial of the BrainGate Neural Interface System. This informative webinar is made available to our constituents served by the Massachusetts, Northern New England, Connecticut, and Upstate New York Chapters.
If you or a member of your family are considering genetic testing, you could benefit from meeting with a genetic counselor to discuss the genetics of ALS, as well as the process and ramifications of getting tested.
Thanks to the tireless work of ALS advocates, people diagnosed with ALS who already qualify to receive SSDI benefits are immediately eligible for Medicare as well. That makes Medicare open enrollment an important window of time for the ALS community.
Adequate nutrition helps maintain energy stores, supports a strong immune system, and reduces the risk of chronic diseases. But the demands of caregiving can put healthy meals on the backburner. Here are some tactics to simplify mealtimes while still eating healthy.
The Line provides free, direct telephone access to insurance and benefits experts who can help with navigating eligibility and enrollment in disability benefits and overcoming insurance coverage and financial burdens that impact access to care.
The ALS Association is committed to urgently finding new treatments and a cure for ALS. That means supporting a robust drug development pipeline and maximizing participation in clinical trials.
When my husband Tom was diagnosed with ALS, we were embraced by the ALS community. But as his health declined, I didn’t really feel ALS was what was stealing my husband from me. I felt more connected to people losing loved ones to frontotemporal dementia, also known as FTD. I did lose my husband to ALS… a particularly cruel and nasty form of ALS that includes FTD.
A 3-part virtual workshop series for any caregiver looking to manage stress, cope with difficult emotions, and support their loved one with ALS. This free series is provided by Beyond My Battle for the ALS Association Chapters of Upstate New York, Northeast New England, Connecticut, Rhode Island, and Massachusetts. It is sponsored by Mitsubishi Tanabe Pharma America.
October 1st marks the first day of National Physical Therapy Month, a time to raise awareness of the key role that physical therapists play in helping people improve mobility, find relief from pain, and live healthier, more physically able lives.