Paul Kirsch got vaccinated against COVID-19 as soon as he became eligible, telling his wife it was a “must.”
Kirsch had been diagnosed with amyotrophic lateral sclerosis (ALS) in 2018 and wanted to live as long as he could, even as his life became restricted by the degenerative disease taking over his body, said his wife, Emily Kirsch.
Variants in serine palmitoyltransferase, long-chain base subunit 1 (SPTLC1), a gene which encodes to an enzyme involved in the de novo synthesis of sphingolipids, are associated with juvenile amyotrophic lateral sclerosis (ALS), according to study results published in JAMA Neurology.
Although we each experience a different journey with ALS, I believe we all can relate to first-year mistakes. Following are three of mine and how I conquered them.
On September 15, Amylyx Pharmaceuticals announced that its bid to submit a new drug application (NDA) for its amyotrophic lateral sclerosis (ALS) investigational asset AMX0035, using data from the Phase II CENTAUR trial, has been permitted following recent discussions with the FDA.
When Hurricane Ida left hundreds of thousands of people without power and access to clean water and medical assistance, it meant special challenges for Louisianans living with chronic illnesses like Lou Gehrig's disease.
When Kyle Brown was diagnosed with ALS earlier this year, he was given months to live. Since then, he's gotten married, completed the IRONMAN 70.3 World Championship race in St. George and inspired thousands by telling his story.
Navigating the world of healthcare and insurance, especially Medicare, can be very complicated and overwhelming. It's important to make the right decisions when it comes to health insurance plans and to understand the available options that could impact the critical care you need.