As we continue to do whatever it takes to make ALS a livable disease, we are sharing some of the many resources we have available for the ALS community to help educate, inform and guide you through the ALS journey.
An ALS diagnosis is a devastating diagnosis in and of itself, but to learn your loved one has FTD as well can make it even more challenging to comprehend.
Jacksonville Jaguars assistant head coach Charlie Strong, Windy Bitner, whose husband Dave Bitner died of complications from ALS, Jaguars head coach Urban Meyer and, Jacksonville Mayor Lenny Curry took the first dunk into the pool inside TIAA Bank Field Thursday, July 22, 2021, as part of the CEO Soak fundraiser for the ALS Association.
Lawmakers pressed a top Food and Drug Administration official Thursday for answers on why the agency has balked at approving medicines to treat the fatal neurodegenerative condition ALS. Two key politicians even called out specific drug candidates by name, a rare congressional boost for the biotechs behind them.
Amylyx Pharmaceuticals, a Cambridge biotech founded by two Brown University undergraduates who came up with an idea for an ALS drug in a dorm, has raised $135 million in new venture capital.