Progress is being made. Never before in the history of this disease have we seen so many talented scientists and researchers, ALS advocates, and health care professionals, working together, providing even more hope for the families we serve.
Motivated by the profound impact of ALS on their lives and families, Alex and Cory decided to use their shared passion for golf, and both their fathers' love of the sport, to make a difference. They envisioned creating an annual event that would raise both awareness and funds for ALS research and support, and with that the ‘100-Hole Challenge to Beat ALS’ was born.
Deanna was a long-time Wisconsin volunteer and advocate, along with her husband John Jaeckel who is living with ALS. Deanna died suddenly on December 18, 2022. She is remembered by all who knew her, including Tom Kettler who shared this tribute.
84 years ago on July 4, 1939, Lou Gehrig gave his "Luckiest Man" speech and brought international attention to ALS. His legacy continues to raise ALS awareness and support in the search for a cure.
Lluvia Alzate started doing pageants in hopes to have the platform needed to spread ALS awareness, while her mom Fanny was battling ALS. Fanny passed away in December 2022, and Lluvia continues to honor her memory. She was crowned Miss Houston USA 2023 and is competing in Miss Texas USA 2023 this summer.
Since 2019, The ALS Association Roundtable Program has provided a forum for candid, facilitated discussions that guide our strategy for ALS care, advocacy and research. Here are just a few examples of how Roundtable discussions have been turned into positive action for people living with ALS and their families.