“I will do anything for this cause in memory of my wife and so I’m especially honored to announce the Donna J. Seggebruch Legacy Challenge!” - Steve Seggebruch
We are excited to share our 2023 Mid-Year Report, detailing the work and achievements that have shaped the first half of this year, touching on all aspects of our mission: research, care services and advocacy.
For people living with ALS and their families, working with health insurance providers at all stages of the disease is a necessity to obtain the critical care and services they need. The ALS Association, local ALS care teams, and ALS multidisciplinary clinics can all be helpful in getting access to the care and equipment needed for people with ALS to live their lives as they choose.
As an occupational therapist, Katie Adams had a keen sense of what was happening to her body when her ALS symptoms first started and was pretty sure she knew why. Little did she know her intuition would not only prove to be correct but would lead her to fighting for access to the care and equipment she needed just to live.
In 2014, three brothers along with other members of their family participated in the viral Ice Bucket Challenge. Now, after losing their father to ALS in 2019, they'll be participating in the 2023 Orlando CEO Soak to help raise awareness around ALS and help raise critical funds for research.
Health insurers can play a critical role in making ALS livable for everyone, everywhere, but all too often barriers are erected that prevent people from accessing the health care services they need. We discuss the different barriers families affected by ALS have to face and The ALS Association's fight alongside them.