ALS Focus™ is a survey program developed by and for people living with ALS and their caregivers. Through ALS Focus research, we scientifically measure the preferences, needs and experiences of people living with ALS and their caregivers in the United States.
We want to help you live with ALS and help your caregivers feel confident in their role. Here are nearly 60 fact sheets and guides to give you and your loved ones information about everything from benefits, caregiving and home care to research, speech and swallowing, alternative treatments and more.
Registered dietitians and nutritionists are the nation’s food and nutrition experts. They’re the health care experts dedicated to advancing the nutritional status and health of people living with ALS in communities nationwide. Proper nutrition and hydration are critical in sustaining weight to prolong and maintain quality of life for people with ALS. Learn more.
ALSUntangled, an award-winning website dedicated to helping people with ALS figure out whether alternative and off-label treatments are effective and appropriate, has created a list of 10 red flags people with ALS should be aware of when considering off-label treatments they read about on the Internet.
We support the A.C.T. for ALS Act (H.R. 7071) and believe it should be strengthened by helping fund ALS research and by ensuring people with ALS in clinical trials can continue receiving treatments that may be helping them. We believe these steps will help improve its chances for passage and ensure it helps even more people with ALS.
In his farewell speech at Yankee Stadium on July 4, 1939, Gehrig called himself the luckiest man on the face of the earth. He wasn’t thinking of himself, though. He was thanking those who had helped him in life. He was helping his family, his friends, and his fans get through the ordeal of his illness.
The National Institutes of Health on Wednesday announced plans to spend an additional $25 million to create a new program that will speed up ALS research and support cutting-edge approaches to understanding the disease and developing treatments. The money is scheduled to be spent over five years targeting innovative research through a program called Accelerating Leading-edge Science in ALS – or ALS2.
The ALS Association strongly supports initiatives to enable people with ALS to access promising treatments as soon as possible, including prior to FDA approval. Our primary goal is to facilitate the development of effective treatments and help support delivery to everyone with ALS as soon as possible.