We spoke with Dr. Melinda Kavanaugh, clinical social worker and associate professor at the University of Wisconsin-Milwaukee, to understand more about young caregivers and the potential harms caused by the lack of quality of sleep they receive and what can we do about it.
As scientific researchers continue to uncover new genetic links to amyotrophic lateral sclerosis, the rise of gene therapies to treat the neuromuscular disease will remain a development to watch in the coming years.
Maureen Stemmelen was diagnosed with ALS in 2016. She has always been known as "the Gatherer", bringing friends, family and community in with open arms and an open heart. Her ALS journey has only served to affirm this, and she encourages everyone to lean in, let your friends, family and neighbors surround you - caregivers are your lifeline.
The Vanderbilt University Medical Center ALS Clinic in Nashville, Tennessee provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
The Dent Neurologic Institute in Buffalo, New York provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
The Strong Memorial Hospital in Rochester, New York provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
The Syracuse VA ALS Clinic in Syracuse, New York provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
When the FDA recently accepted Biogen’s new drug application for tofersen, it signaled hope for thousands of people with SOD1 mutations that cause ALS. The FDA has granted priority review to this new drug application and is expected to decide on whether or not to approve tofersen by January 25, 2023.
Gimble, Guerin, Reiley & Brown, LLC came out in force for their partner, Jeff Kaufman, when he was diagnosed with ALS. GRBG, the "original sponsors" helped elevate us to who we are today.
The ALS Association Massachusetts and Northern New England Chapters present their Fall Symposium for Mobility and Homecare in ALS. Join us Wednesday, September 21, 2022 at the Morse Institute Library in Natick, MA for an educational day featuring prominent guest speakers.