To maintain social distancing rules for the annual walk, people were asked to participate in their neighborhoods or on local trails. “Definitely sad we weren’t able to see everyone on walk day. It’s such a special day but we’ve got awesome pictures, awesome videos that we’ve been sharing all day,” said Katie Crouch of ALS Association of New Mexico.
Jurado-Diaz has ALS, but he does not speak of surrender even though the disease is progressing quicker than he had anticipated. His voice still sounds upbeat and he gives no indication that he was suffering from the terminal disease.
Jurado-Diaz, an East Hartford resident, is the subject of a 13-minute documentary, “A Spirit in Flight.”
N.E.T. & Die of Fulton New York, a third-generation family-owned machine shop, recently donated $10,000 to benefit the ALS Association of Upstate New York. The donation — which more than doubled the company’s fundraising goal — was made in honor of 25-year company employee Nelson Walter, who was diagnosed with ALS in 2014 and passed in 2018.
An Eastern Iowa man is using his personal experience to help raise awareness and find a cure for ALS.
Rusty Bromwell is an Army Veteran and was diagnosed with ALS - Lou Gehrig’s Disease in January, after struggling with symptoms for a year and a half. So, he and his wife decided to form a team and Saturday, he along with family and friends walked for the annual ALS walk in North Liberty. However, this year due to COVID-19, the way the walk is being held is different. Instead of one big walk, individual teams are doing their own walk.
Experts at the Centers for Disease Control and Prevention say about 5,000 Americans are diagnosed with ALS every year. A local couple is driving across the country to raise money and awareness for the disease.
John Robert Herzberg says his godfather, Mark Lang, is adventurous and always trying something new. “He’s a very active guy,” Herzberg said. “I guess he introduced me to getting out there and doing things.” Three years ago, he was diagnosed with amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease.
A potential therapy for amyotrophic lateral sclerosis, a fatal neurological disorder, may allow patients to live several months longer than they otherwise would have, according to a study published Friday.
The two-drug combination, dreamed up by two college students, is one of several potential treatments raising the hopes of patients with ALS, also known as Lou Gehrig’s disease.