ALS struck the family in 1994, then again in 2009 when Kristene lost her aunt. In 2012, the disease struck her uncle, and in 2014 it struck another aunt.
An Army veteran who spent nearly a year in Iraq with the Army's 101st Airborne Division, Dustin Fast is an artificial intelligence software engineer in Huntsville. After receiving an ALS diagnosis, Fast realized firsthand the needs in the ALS community and has enrolled in UAB’s neuroengineering doctoral program. He plans to incorporate artificial intelligence and machine learning in efforts to build better eye-activation software.
Zach Hudson, who has done stunt work in a number of movies and TV shows including Pirates of the Caribbean and New Girl, is currently battling ALS and in need of donations to help cover treatments and other expenses.
We are deeply sorry to share that Pat Quinn passed away today. Pat was co-founder of the ALS Ice Bucket Challenge and an inspiration to millions of people around the world.
Like many family caregivers, Linda juggles caregiving and her career. According to the National Alliance for Caregiving, 61 percent of family caregivers continue to work.
Often ALS takes away a person’s ability to swallow safely, and if so maintaining adequate nutrition can become a challenge for people living with ALS and their caregivers. And finding delicious family friendly recipes for all to enjoy during the holidays can be difficult.
The ALS Association and I AM ALS on Friday submitted a petition to the Food and Drug Administration calling on the agency and Amylyx Pharmaceuticals to act swiftly and with urgency to make AMX0035 available as soon as possible. The petition was signed by more than 50,000 people from across the country who have been affected by ALS.