It’s going to take all of us working together, doing whatever it takes, to make ALS a livable disease and ultimately find a cure. It’s going to take researchers, clinicians, and scientists across the globe, urgently collaborating to reach our common goal – a world without ALS.
Maggie Broeren and Michael Coffey hosted a virtual discussion for the Wisconsin Chapter this past April where they introduced some ideas around death and dying that prompted a deeper discussion. This article touches on some of the key points of those conversations and some take aways from the experience.
We talked with Dr. Devesh Pant, postdoctoral fellow from Emory University, to learn more about his research focused on revealing the underlying molecular mechanisms in ALS caused by the SPTLC1 mutations.
While thinking about what I could do that would be a special and fun fundraiser, I noticed a famous drag queen asking for donations to a nonprofit on her social media and I thought “How do I get her to do that for The ALS Association?”
Emergencies and disasters can strike quickly and without warning. For the thousands of Americans living with ALS, emergencies such as fires, floods and acts of nature present an even greater challenge. Here are some ideas and things to think about to help keep you and your family safe in case of an emergency or a natural disaster.