Since an ALS diagnosis in 2017 forced his early retirement from Apple, Steve Kowalski has made ALS his full-time job. In 2018, Steve's former colleagues formed a team for the annual Massachusetts Ride to Defeat ALS ® event in Steve's honor. They have since raised more than $220,000 in support of Steve and our mission.
We recently talked with Ashley Wong, one of the 2022 scholarship recipients, to learn more about her personal connection to ALS, what receiving the scholarship means to her, and her future plans in healthcare.
As ALS progresses, the challenges of maintaining good nutrition as well as avoiding malnutrition change. With the support of caregivers and a multidisciplinary care team, these challenges can be managed to provide both the best nutrition and best quality of life at all stages.
The ALS Association, the country’s largest nonprofit committed to making ALS livable and finding a cure, today celebrated the Food and Drug Administration’s (FDA) approval of AMX0035, a new treatment for people living with amyotrophic lateral sclerosis (ALS), a fatal neurodegenerative disease. The Association invested $2.2 million of funds raised through the 2014 ALS Ice Bucket Challenge into the development and trial of AMX0035, and led the years-long advocacy campaign that pushed the FDA to approve the treatment prior to completion of an ongoing phase 3 trial.
Kelly Movroydis is teaming up with Fat Daddy's in Walker's Point to host a Volleyball Tournament to benefit The ALS Association and support Wisconsin families living with ALS.
We recently talked with Liam Rudin, one of the 2022 The Jane Calmes ALS Scholarship recipients, to learn more about his connection to ALS, what receiving the scholarship means to him, and his future plans studying accounting.
Earlier this week, The ALS Association filed comments with the Centers for Medicare and Medicaid Services (CMS), urging the agency to provide Medicare coverage for seat elevation systems in power wheelchairs since these systems are a medical necessity for people living with ALS.
We strongly disagree with ICER’s final report on new ALS drugs, which may result in people living with ALS being unable to access life-extending treatments. ICER’s flawed conclusions were based on their discriminatory methodology, as the National Council on Disability has documented.
The Alma Eagles volleyball team is rallying to honor former coach Carl Duley, a great supporter of ALS research since his own ALS diagnosis. The night will include the volleyball game, a 50/50 raffle, and a silent auction.
Over the past 11 years, the Dogleg Open has raised more than $95,000 to help fund research and patient support for the thousands of ALS and MS patients here in Wisconsin. A large percentage of the money they raise is through hole sponsorships and raffles on the day of the event.