When most people think of disease research, they think of clinical trials, which test the safety and effectiveness of new medications. Not everyone can participate in clinical trials, but there are other ways you can help.
Besides clinical trials, you can join a patient registry, fill out surveys, and participate in observational trials – studies where doctors observe someone’s disease over time to learn about how it progresses.
The ALS Association Massachusetts Chapter is thrilled to enter the 2021 ASICS Falmouth Road Race with an inaugural team of 15 runners. Learn more about this year's application process, challenge requirements, and other relevant information with this question and answer article.
Lynn Hogan became a caregiver early in her relationship her fiancé, Steve Ziegler. “On our first date we went out and he was sitting next to me and he said, ‘You might notice -- don't get weirded out or anything -- but you might notice some twitching, weird stuff going on with my arms. We don't know what it is yet. But one of the things it could be is ALS,’” she recalled.
Hearing from your doctor that you’ve been diagnosed with ALS is often difficult and overwhelming. Telling those you love about your diagnosis can be just as hard. When do you tell them? How do you tell them? What should you say? The most important thing to remember is you’re in control of how and what you share. Learn more.
We recently talked with Garrett Sakomizu, one of the 2022 recipients of The Jane Calmes ALS Scholarship, to learn a little more about his connection to ALS, what receiving the scholarship means to him, and his future plans in healthcare and ALS research.
We thank all the teams who have supported our chapters over the years and are thrilled that every team will now be celebrating Lou Gehrig Day and the ALS community.
Through the love of my family and friends, like you, I have raised nearly $60,000 to help individuals, like me, who battle this ridiculous disease. YOU have become part of a community that together has provided a lifeline of support to others with ALS--so that they can live!
About two-thirds of individuals with familial ALS and 10% of people with sporadic or singleton ALS (with no known family history) have a known ALS-associated genetic mutation. If you have familial ALS, a genetic test may help you determine what's causing your ALS, as well as the risk of disease in your family members.