The ALS Association joined with 32 consumer and patient advocacy organizations in calling on Congress to enact legislation in response to the COVID-19 pandemic that protects and expands access to quality, affordable health insurance.
Dr. John Ravits, Professor of Clinical Neurosciences and Head of the ALS Translational Research Program at the University of California, San Diego (UCSD) is a physician-scientist at the forefront of ALS thought and research of sporadic and familial ALS. Yesterday, at the 69th Annual American Academy of Neurology (AAN) Meeting in Boston, he was presented the prestigious 2017 Sheila Essey Award by Dick Essey, founder of the award named in honor of his wife Sheila who battled with ALS for ten years and died from the disease in 2004.
Being a caregiver for someone living with ALS can be a full-time job. It’s sometimes rewarding and sometimes stressful, but usually somewhere in-between. Support from the VA, The ALS Association and other organizations is available to help you not only provide care for your loved one, but also remind you to care for yourself. Learn more.
Home modifications can be permanent or temporary, low‐tech or extremely sophisticated. Some are easy and inexpensive to implement; others require major renovations and are costly. Many families rely on a range of solutions to meet their needs.
A wide range of equipment and technologies can improve mobility and help manage ALS symptoms as the disease progresses. These devices can make it easier for people living with ALS to get around their homes, speak and perform day-to-day tasks like bathing and going to doctor’s appointments—making life easier for both the person living with the disease and their caregiver. Learn more.
Adequate nutrition helps maintain energy stores, supports a strong immune system, and reduces the risk of chronic diseases. But the demands of caregiving can put healthy meals on the backburner. Here are some tactics to simplify mealtimes while still eating healthy.
The ALS Association is committed to advancing critical policies that help to find new treatments and cures, optimize current treatments and care, and prevent or delay the harms associated with ALS. State policymakers have the power to change the future of ALS by taking action on The ALS Association’s public policy priorities.
The ALS Association has worked on developing and implementing new educational tools to meet the needs and requests of our community. We are pleased to announce and highlight two of our newest projects - our resource guide series translated into Spanish and the Key Medical Information App - which are now available.
Dr. Ileana Howard is the Medical Co-Director of VA Puget Sound, an ALS Association Certified Treatment Center of Excellence, and will be joining us at our ALS Nexus conference to share her insights while exploring actionable steps to dismantle barriers to access, from advocating for policy changes to fostering community partnerships, to ensure everyone living with ALS has access to state-of-the-art care.