Every year, skiers on Team ALS go to the American Birkebeiner (the premier cross-country ski race in North America) in honor of John Jaeckel, who is living with ALS, and all other Wisconsin residents battling the disease.
There is no cost for skiers to participate, we request that Team ALS members raise at least $1000 toward the cause.
The ALS Association’s nationwide network of local care teams work tirelessly with families to provide education, support and resources to help. One of those care team members is Melissa Enfinger, director of care services in Alabama, who works very closely with the Woody family in Auburn.
The United States Department of Veterans Affairs has made RELYVRIO available for the treatment of ALS for veterans who are living with the disease who receive care at VA clinics or ALS specialists, becoming one of the first health care payers or insurers to provide access to the drug.
Every year, skiers on Team ALS go to the American Birkebeiner (the premier cross-country ski race in North America) in honor of John Jaeckel, who is living with ALS, and all other Wisconsin residents battling the disease.
There is no cost for skiers to participate, we request that Team ALS members raise at least $1000 toward the cause.
Holiday celebrations and traditions are times of fun, fellowship and of course, food. And, while the holidays are meant to be enjoyed, they can also be a tremendous stressor for people living with ALS and their families.
The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the FDA for use in the treatment of ALS in September, available and accessible for people living with ALS.