From the latest updates on ALS research and advocacy to information about caring for people living with ALS and inspiring stories from around the country, The ALS Association’s blog covered it all in 2022. Here is a quick look at the top ten posts our readers enjoyed most.
When I was diagnosed with ALS in 2018, my wife Kristina and I knew we were in for the fight of our lives. But I don’t think we were truly prepared for the devastating impact it would have on our family.
For a variety of reasons, many individuals experience dysphagia, or difficulty swallowing, and therefore require liquids or soft consistency foods to meet their nutrition requirements. In this booklet you will find a festive holiday menu designed for individuals with difficulty swallowing.
We spoke with Pam Knott, vice president of data and technology at The ALS Association, to learn more about how the Association is harnessing the power and potential of big data to speed up the process of empowering people to live longer lives, to access care, to bring new treatments to market, and to reduce the harmful impact associated with the disease.
Join us on Thursday, February 9th for an inspirational evening dedicated to raising awareness and defeating ALS at the Changing the Game gala. Lou Gehrig, the iron horse of baseball, showed extraordinary commitment to the game for many years. Even in the face of the devastating diagnosis of ALS, his spirit of courage remains an inspiration to this day. Changing the Game forever secures the Spirit of Lou Gehrig Award Honorees as champions of ALS who, like Lou Gehrig, "Changed the Game."
Cole Thompson and Lamar Woody have been friends since the seventh grade, although Cole readily admits he had lost touch with his friend after college. Cole moved away from Auburn, Alabama, and life took him and Lamar in different directions. Then one day Cole saw a GoFundMe page someone had created for Lamar and his family after Lamar was diagnosed with ALS. “From there, Lamar and I started chatting again on Facebook, and rekindled our friendship,” Cole says.
The ALS Association recently filed comments with the National Institute of Health (NIH) to provide the National Advisory Neurological Disorders and Stroke Council and their Council Working Group with constructive feedback on the development of the NINDS 2022 Draft ALS Strategic Plan.
Across our mission, we saw amazing progress in the fight against ALS in 2022. When we come together as one team with one mission, we have an opportunity to change the world.