In recognition of National Social Work Month, we are shining a spotlight on the many invaluable services a social worker provides for people with ALS and their families.
Larry Falivena, member of The ALS Association’s Board of Trustees who is living with ALS, shares his unique experience with the disease and his perspective on genetic testing.
The U.S. House and Senate are preparing legislation that determines how much will be spent on research. We need as many members as possible of the House and Senate to sign “Dear Colleague” letters committing to support increased funding for ALS.
Fundraising through the Walk to Defeat ALS drives bold and urgent innovation as we march together toward a treatment that makes ALS livable for everyone, everywhere – until we find a cure.
The ALS Association established a nationwide state policy and advocacy department committed to empowering people living with ALS and their families to fight for better public policies in their community.
With the emergence of gene-targeted therapies, knowing whether your ALS has an underlying genetic cause is becoming more important. Research has shown that about two-thirds of people with familial ALS and about 10% of people with sporadic ALS (no family history) have a mutation (or change) in at least one of the more than 40 genes that have been linked to the disease.
We regularly bring together leaders in the fight against ALS to share the latest developments in the work being done to make ALS livable for everyone, everywhere until we find a cure.