While knowledge is power in many circumstances, knowing you have lost several members of your family to familial ALS, and understanding you may also carry the mutated gene, can be a heavy burden to live with. With technology continuously evolving, new potential treatments in the ALS research pipeline through clinical trials and the ability to get answers through a genetic test, there are more factors to consider today than ever before. Peter Hackett shares his family's ALS story and what led him to the decision of taking the genetic test.
For people with ALS, an occupational therapist (or OT) is there to help them maintain their independence for as long as possible as well as to find ways to maintain their quality of life. April is Occupational Therapy Month, so what better time to explore the many, and varied, ways an OT can make a difference.
We are forever grateful for the many volunteers working with us to create a world without ALS. Volunteers like Mike Koehler in Kansas City, Missouri make a big impact. Mike leads the volunteers for all three of their Kansas City events, including a gala, a golf tournament and the Kansas City Walk to Defeat ALS®. He organizes the volunteers and acts as their main point of contact, managing and assigning tasks on the day of the events.
