We are deeply sorry to share that Pat Quinn passed away today. Pat was co-founder of the ALS Ice Bucket Challenge and an inspiration to millions of people around the world.
Like many family caregivers, Linda juggles caregiving and her career. According to the National Alliance for Caregiving, 61 percent of family caregivers continue to work.
Often ALS takes away a person’s ability to swallow safely, and if so maintaining adequate nutrition can become a challenge for people living with ALS and their caregivers. And finding delicious family friendly recipes for all to enjoy during the holidays can be difficult.
The ALS Association and I AM ALS on Friday submitted a petition to the Food and Drug Administration calling on the agency and Amylyx Pharmaceuticals to act swiftly and with urgency to make AMX0035 available as soon as possible. The petition was signed by more than 50,000 people from across the country who have been affected by ALS.
John Jaeckel and Don Sheehan are from Hayward, WI. John is a former athlete, High School Special Education Teacher, and coach. He was diagnosed with ALS on July 21, 2010 and continues to battle this horrible disease.
Don served in Vietnam from January of 1968 to January of 1969. He Started working for the City of Hayward Police Department in 1971 and was known as the "Sunday Cop". Don then became Chief of Police and had a total of 35 years with law enforcement. After 8 years of testing, Don was diagnosed with ALS on November 1, 2018 at the Minneapolis VA Medical Center.
You may know the old saying “ship shape.” In many ways, that old reference to order and fitness defined Yvette Wilson’s life. She joined the United States Navy immediately after high school and the discipline that experience gave her has shaped her life in many ways. Even after she left the Navy, she lived an orderly life, blessed with good health and a loving family in Albuquerque, New Mexico.
All signs pointed to a wonderful future, until one day she started experiencing a heaviness in her feet.