John Hedstrom, Executive Director of The ALS Association Massachusetts Chapter, greets the Massachusetts ALS community with a Happy New Year and robust plans for the Chapter at the start of 2021.
After watching his Aunt Christie battle ALS for more than nine years, twenty-one-year-old Ryan Wilson was determined to find a way to honor her fight and make a difference for the ALS community. So, he decided to ride his bike from Poughkeepsie, NY to Miami, FL to help raise awareness and funds for ALS research.
Six months after their wedding, Jonathan began noticing unusual weakness in his right hand which persisted, and then seemed to inexplicably spread into his right leg. Because of his medical education, he suspected ALS.
Despite the many challenges caused by COVID-19 this past year, ALS research made strides toward finding effective treatments for ALS. As 2020 winds down, we wanted to share an update from our partners at Biogen on some of their ongoing research projects.
The ALS Disability Insurance Access Act went into law Tuesday, removing the 5-month delay for people with ALS to access the Social Security Disability benefits. This marks the culmination of a multi-year fight by ALS advocates across the country.
Back in 2000, when Veronique Belzil was working as a counselor in Canada, she found a new path after watching her husband’s uncle quickly succumb to ALS.