We are deeply grateful to the eight speakers who shared their wisdom and personal experience with the FDA, as well as the more than 150 others from the community who have done so online. We continue to hear that people with ALS want effective treatments now, even if they offer modest benefit, and are willing to face considerable uncertainty and risk to do so.
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
The South Florida CEO Soak is a corporate version of the Ice Bucket Challenge engaging corporate leadership to get soaked while raising money to benefit The ALS Association Florida Chapter. South Florida area executive leaders that commit to being a “Soakee” will raise awareness and funds for ALS patient care, research and advocacy – providing critical support to ALS families. It will all culminate at Tigertail Lake Recreational Center in Dania Beach where the "Soakee" will be soaked in their work attire.
The Jacksonville CEO Soak is a corporate version of the Ice Bucket Challenge engaging corporate leadership to get soaked while raising money to benefit The ALS Association Florida Chapter. Jacksonville executive leaders that commit to being a “Soakee” will raise awareness and funds for ALS patient care, research and advocacy – providing critical support to ALS families. It will all culminate at TIAA Bank Field - North End Zone Spa & Cabana area where the "Soakee" will be soaked in their work attire.
Eric wanted to share his story about his journey with the world, about his colorful past and his inspiring present living with ALS. So, he and his family joined up with filmmaker David Gaynes and his team at DG Filmworks, creating a heartening documentary, “A Spirit in Flight”; an intimate portrait of Eric, his life, and how he is living life to the fullest after his diagnosis with ALS.
The ALS Association Massachusetts Chapter announces its partnership with The Boston Red Sox and Worcester Red Sox to celebrate the 1st Annual Lou Gehrig Day. Together we are thrilled to offer two exciting opportunities for our Massachusetts ALS community.
