Submitted by: Cecilia R. on Sat, 12/25/2021

Hello
I love this story.
I really feel the same.
Unfortunately, my father has suffered from ALS for 12 years now. My mother is also the one who lives with him and takes care of him. We live in Colombia and my two siblings live abroad. This is why I am always very aware of helping in everything that is necessary. My father currently has a gastrostomy, dependent oxygen, he can hardly speak at all anymore, he is in bed all the time, he can only move his hands. He no longer has the strength to withstand the respiratory Bipap, so at night he sleeps with oxygen at 5 liters and sometimes his oxygen saturation drops a lot. I'd like to know what we could do, and what other tips could they give to us for my dad's quality of life.

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