Submitted by: Jasson R. on Fri, 06/11/2021

Iam 42 years old I have ALS iam progressing alot more these days with more bad days than good.i have found it is hard to get clinical trials to help live a better life or to find a cure.i have a 3 year old daughter and have come to the relisation that I will not be here for alot of her life.i would do anything and I mean anything to have one more second of one more minute of another hour of one more day with my family my wife and kids.it seems iam dieing a slow agonizing death of Wich there is no help.and the access of help is being ignored by the FDA if anything I wish they would open there eyes and help one more little girl and one more wife or one more family not go through what ours are.help us help ourselves open your eyes to the heart break that this disease does to everyone connected to it not just those of us living with the disease.

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