My brother was formally diagnosed at 37 and lived a long, productive and hard but joyful life till age 60 with an absolute angel of wife as his primary-giver. He’d been full physically incapacitated for about 15 years, on a feeding-tube, but still managed to communicate with and know tens of thousands around the globe who followed his blog at unshakeablehope.com. He was set-free of his ALS-imperiled body Dec. ‘20.