Submitted by: Lisa W. on Sun, 04/28/2024

I met Dr Mehta when I took my husband to Baltimore John Hopkins after he was diagnosed because Vanderbilt in Nashville was so horrible. She was wonderful but we lived in Tn. I didn't understand the difference between hospice and Pallative and when Bob got so bad I had no choice but to go right to hospice October of 2023. Hospice did not understand ALS and although they tried it fell very short of what he needed. Bob died January 5, 2024, I struggle every day if I did enough. I was his only caregiver and it was so hard. Caregivers need more help and Hospice needs training on Pallative care and what ALS patients need. I pray everyday for more treatment and more help for ALS patients and their families.

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