I lost my son to ALS 2years ago. Before he was diagnosed we really knew very little about the disease. We met Drs. Who were caring and helpful, and some who didn’t deserve the title. Stephen fund raised, and had wonderful friends who helped and supported him, and the ALS Association. If I had only one wish, I would want every person who has a family member with ALS to be tested for C 9 chromosome and if you have it, to think about how we can Stop ALS, The only way is to stop passing it on. Have your Children tested .