She’s competing in the Miss Texas USA pageant, and she’s using her platform to shine a light on a devastating disease that has changed her family’s life.
Her mom has been living with the disease for over two years.
Juan Reyes, a U.S. military Veteran living with ALS, and an MTPA Patient Ambassador for RADICAVA, shared his personal story of living with ALS on KPRC 2+. He discussed how he is embracing his now to help educate the community about ALS. Juan was joined by his wife and primary caregiver Meg Reyes.
Kathy Poirier, 55, from Florida, suffers from ALS, a progressive nervous system disease that affects nerve control in the brain and spine
When her son Zak Poirier, 28, married Anja d'Adesky, 27, on April 9, he enlisted his brothers' help to make his mother's wish of sharing a dance with him a reality
Footage of Kathy's three sons lifting her out of her wheelchair and holding her on the dance floor was shared on Instagram last month
One video of the heartwarming moment has been viewed more than 2.7 million times, and many commenters were overcome with emotion after watching it
The president and chief executive officer of The ALS Association discussed how prevention is being talked about in the ALS community and why it’s no longer a far-off reality.
For 30 years, Dr. Joel Shamaskin was a primary care physician in Rochester, New York. When he received a life-changing ALS diagnosis in 2016, he channeled his energy into what mattered most -- his family and his community. He offers his Brief But Spectacular take on living with ALS.