Now wheelchair-bound, the 46-year-old actor — and parent of one teenage daughter and one school-aged son — grapples with how to continue to be a dad, actor, and artistically honest man, without the use of his legs.
Select patients with clinically verified frontotemporal dementia or amyotrophic lateral sclerosis, and pathologic features of both disorders have disease-related expansions in the HTT gene, despite a total absence of standard Huntington's disease striatal pathology or clinical features. Experts said the findings could have therapeutic implications for drugs in development for Huntington's disease.
Each outfit Bedlack wears is calculated to disarm patients who might be nervous, open a topic of conversation, or make at least one element of a medical visit enjoyable for both him and his patients.
The inaugural Strike Out ALS softball tournament was held Nov. 7 at the Rehoboth Little League fields. On a sunny November day, the locally organized tournament hosted eight softball teams that played all day to raise money for the Greater Philadelphia ALS Association.
ALS struck the family in 1994, then again in 2009 when Kristene lost her aunt. In 2012, the disease struck her uncle, and in 2014 it struck another aunt.
An Army veteran who spent nearly a year in Iraq with the Army's 101st Airborne Division, Dustin Fast is an artificial intelligence software engineer in Huntsville. After receiving an ALS diagnosis, Fast realized firsthand the needs in the ALS community and has enrolled in UAB’s neuroengineering doctoral program. He plans to incorporate artificial intelligence and machine learning in efforts to build better eye-activation software.
Zach Hudson, who has done stunt work in a number of movies and TV shows including Pirates of the Caribbean and New Girl, is currently battling ALS and in need of donations to help cover treatments and other expenses.
N.E.T. & Die of Fulton New York, a third-generation family-owned machine shop, recently donated $10,000 to benefit the ALS Association of Upstate New York. The donation — which more than doubled the company’s fundraising goal — was made in honor of 25-year company employee Nelson Walter, who was diagnosed with ALS in 2014 and passed in 2018.