When Hurricane Ida left hundreds of thousands of people without power and access to clean water and medical assistance, it meant special challenges for Louisianans living with chronic illnesses like Lou Gehrig's disease.
When Kyle Brown was diagnosed with ALS earlier this year, he was given months to live. Since then, he's gotten married, completed the IRONMAN 70.3 World Championship race in St. George and inspired thousands by telling his story.
Jacksonville Jaguars assistant head coach Charlie Strong, Windy Bitner, whose husband Dave Bitner died of complications from ALS, Jaguars head coach Urban Meyer and, Jacksonville Mayor Lenny Curry took the first dunk into the pool inside TIAA Bank Field Thursday, July 22, 2021, as part of the CEO Soak fundraiser for the ALS Association.
Lawmakers pressed a top Food and Drug Administration official Thursday for answers on why the agency has balked at approving medicines to treat the fatal neurodegenerative condition ALS. Two key politicians even called out specific drug candidates by name, a rare congressional boost for the biotechs behind them.
Amylyx Pharmaceuticals, a Cambridge biotech founded by two Brown University undergraduates who came up with an idea for an ALS drug in a dorm, has raised $135 million in new venture capital.
The smile was hidden behind her respirator, but Lisa Mauriello’s eyes sparkled as she received her first dose of an experimental drug called Toferson, which doctors believe could halt the progression of the rarest form of ALS currently tearing away her quality of life.