Laura Lambrecht never expected to lose her father, Mark, in the way she did two years ago. Mark suffered from ALS, or Lou Gehrig’s disease, a devastating nervous-system illness that slowly robs patients of their independence and ability to live a normal life. He passed away peacefully at home in January 2020, just a year after his diagnosis.
A paralyzed man has tweeted a message out to the world using his thoughts through a brain-computer interface. It's thought this is the first time a message has been successfully posted on social media directly using an implantable brain-computer interface.
President Joe Biden on Thursday signed into law bipartisan legislation that expands funding for amyotrophic lateral sclerosis research, hailing it as in "the spirit of the season."
Amylyx Pharmaceuticals, Inc. today announced that the U.S. Food and Drug Administration (FDA) has accepted for review its New Drug Application (NDA) for AMX0035 (sodium phenylbutyrate (PB) and taurursodiol (TURSO; also known as ursodoxicoltaurine)) for the treatment of amyotrophic lateral sclerosis (ALS). The FDA has granted Priority Review and assigned a Prescription Drug User Fee Act date for AMX0035 of June 29, 2022, the target date by which the FDA intends to complete its review and take action on the NDA. The Agency noted that it is currently planning to hold an advisory committee meeting to discuss the application. Amylyx additionally is preparing to submit an Expanded Access Program (EAP) to the FDA for launch in the United States in the coming months for patients who are ineligible for participation in the global Phase 3 PHOENIX clinical trial.
Asia Jami was diagnosed with Lou Gehrig's disease six years ago. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that impacts nerve cells in the brain and the spinal cord.
Many Americans first learned about amyotrophic lateral sclerosis (ALS) when baseball legend Lou Gehrig said he was the luckiest man on the face of the earth.
Israeli researchers say they used experimental molecule to break down protein whose buildup can cause the debilitating condition, also known as Lou Gehrig’s Disease
In 2002, my dad, Martin Doctoroff, died of ALS. At the time, we thought it was a tragic fluke, as is the case with the vast majority of ALS patients. But when his brother, Mike, was diagnosed in 2008, it was clear the disease wasn’t random. Ever since then, my family has been living with a spectre that was always vaguely present. Now, unfortunately, it appears very likely that I have ALS, too.