Heidi Tarr Henson, diagnosed with ALS last spring, shares thoughts about her personal journey living with the disease, what courage means to her and how she strives every day to embrace and live by this powerful virtue.
Elizabeth Bradley lost her husband Woody to ALS, and has used his passing as inspiration to pursue a Master of Science in Psychology.
To complete her research project, she needs survey responses soon!
My parents had been married less than two years when my dad was diagnosed. Of course, making a decision regarding whether or not to start a family was difficult at the time, but due to their faith and positive outlook, they chose to do so. Had they not shared the same optimism, my older brother John would not be here, and I would not be writing this today. To say that I am thankful for their decision is an understatement. My dad has had a long battle with ALS and is still fighting after 26 years.
Dr. Heidi Tarr Henson, a Massachusetts woman recently diagnosed with ALS, shares her reflection on how to handle life with ALS and end of life discussions.
Dr. Heidi Tarr Henson, a Massachusetts woman recently diagnosed with ALS, reflects on on in-the-moment advocacy, teachable moments and the power of setting boundaries with ourselves and others.
After Terry Peterson was diagnosed with ALS in 2019, his family decided to preserve the memories of their time together by documenting their journey in a video.
Eric wanted to share his story about his journey with the world, about his colorful past and his inspiring present living with ALS. So, he and his family joined up with filmmaker David Gaynes and his team at DG Filmworks, creating a heartening documentary, “A Spirit in Flight”; an intimate portrait of Eric, his life, and how he is living life to the fullest after his diagnosis with ALS.
The ALS Association Massachusetts Chapter announces its partnership with The Boston Red Sox and Worcester Red Sox to celebrate the 1st Annual Lou Gehrig Day. Together we are thrilled to offer two exciting opportunities for our Massachusetts ALS community.
Gary Stevens lives with ALS, and has a large Walk team that wants to see the disease cured. His friend Todd is helping Gary battle ALS, just like Gary comforted him when his wife was battling cancer.