The ALS Association established a nationwide state policy and advocacy department committed to empowering people living with ALS and their families to fight for better public policies in their community.
With the emergence of gene-targeted therapies, knowing whether your ALS has an underlying genetic cause is becoming more important. Research has shown that about two-thirds of people with familial ALS and about 10% of people with sporadic ALS (no family history) have a mutation (or change) in at least one of the more than 40 genes that have been linked to the disease.
For Allison Lardner, Vice President of Field Development and Community Engagement, the ALS cause is very personal. “His diagnosis literally changed my life, my career… Everything.” He was Allison’s Grandfather, “Big Guy” as he was affectionately known.
We regularly bring together leaders in the fight against ALS to share the latest developments in the work being done to make ALS livable for everyone, everywhere until we find a cure.