After retiring from a 50-year career in computer technology in 2015, Ken Baltes was finally able to follow his creative interests and focus on his passion for the arts. After he was diagnosed with ALS in 2020, he made it his goal to bring his love of the arts to others who are living with ALS.
Diagnosed with ALS in March 2022 at the age of 33, Brooke Eby is using her innate sense of humor and positive outlook on life to help raise awareness and funding for ALS research.
The ALS Association and ALS Finding a Cure® have awarded seven new grants worth a total of $2 million over the next three years to support the development of early diagnostics for ALS.
Melissa Enfinger, a care services director for The ALS Association based in Alabama, knows the importance of mental health when dealing with ALS. Melissa recently joined us on a Connecting ALS podcast episode to help us better understand the role wellness plays in making ALS livable and improving a person’s quality of life and share information about a mental health networking program she is spearheading to help the ALS community.
In 2010, Parker Beam, Master Distiller at Heaven Hill Distillery, was diagnosed with amyotrophic lateral sclerosis (ALS). Fighting silently for three years, he decided to announce his diagnosis publicly in 2013, along with his plan to bring more awareness to the topic. Working with company leaders at Heaven Hill, Parker came up with a creative idea that utilized his 56 years of Whiskey distilling expertise to aid in his new fight against ALS.