We know finding ways to optimize treatments and care, and increasing access to care, helps people with ALS live the way they want with a better quality of life. That’s where multidisciplinary care comes in.
Selina Lavonne Rambo wrote the book "Grandpa's Wise Words" for her children to remember the good times they've experienced with their grandpa even though he was facing ALS. She hopes to share with other families with young kids who are affected by the disease.
The ALS Association and Focused Ultrasound Foundation have partnered to support a small pilot clinical study that will leverage focused ultrasound technology as part of a new ALS treatment approach. The study will be led by Agessandro Abrahao, M.D., an assistant professor of neurology at the University of Toronto and an associate scientist at Sunnybrook Research Institute.
The ALS Ice Bucket Challenge was a global phenomenon that changed the fight against ALS forever. In the summer of 2014, three young men living with ALS took the ALS Ice Bucket Challenge and inspired people around the world to dump ice water on their heads and donate to an ALS organization. Over 17 million people participated in the Challenge and raised $115 million for The ALS Association.
Before the Ice Bucket Challenge, the lack of ALS awareness only added to the struggle individuals and their families face. The needs of people living with ALS were not well understood and services were often lacking. After the Challenge, people knew what ALS was, but we still need more support.