Stories have connected us for generations, often providing impact and making waves of change. Discover some of the most powerful stories from the ALS community and share to help spread awareness of this disease today.
ALS Focus™ results are shared through a variety of conference posters and presentations, government agency reports, peer-reviewed journals and other publications. You can view or download published materials by clicking on the links below.
ALS Focus™ surveys are developed with input from people living with ALS, caregivers, and industry and academic experts. These surveys ask people living with ALS, current caregivers and past caregivers about their needs, experiences and challenges.
ALS Focus™ collects and maintains a database of evidence on people’s self-reported experiences living with ALS and caregiving for those with ALS in the United States, providing a direct lens into what is important to them. This data is publicly available for those focused on ALS research, advocacy and care to utilize in their work and inform their decision-making.
ALS Focus™ is administered by the ALS Association with direct input and guidance from members of the ALS Focus Steering Committee and the Patient and Caregiver Advisory Committee (PCAC).
People with ALS already experience stiff muscles in their hands, arm, legs and feet, and winter temperatures can make this situation worse. Cold weather causes muscles to contract and become tight, which can be painful. However, people living with ALS can still enjoy this time of year. Here are some tips on dealing with cold weather for people affected by ALS.
The Hoffman ALS Clinic Development Awards Program is focused on supporting clinical programs that have, as their foundation, highly skilled experts dedicated to ALS and who drive innovation and quality improvement.