From donations raised through the ALS Ice Bucket Challenge, The ALS Association, in partnership with the Greater New York Chapter, made a $2.5 million commitment to the Center for Genomics of Neurodegenerative Disease (CGND) at the New York Genome Center (NYGC).
The Center for Genomics of Neurodegenerative Disease (CGND) at the New York Genome Center (NYGC) is a prominent player in ALS genetics, leading the way in ALS gene discovery. We are proud to report on its many successes in ALS genetics that were made possible by our major funding efforts.
From that moment, Kids4Cure: Two Brothers on a Mission, was formed. The boys registered a team in the Cincinnati Walk to Defeat ALS in the fall of 2004 and rallied support from across the community. In their inaugural year, they raised more than $80,000 and brought nearly 550 people to walk with them.
Meet Dr. Veronique Belzil, an Assistant Professor in the Department of Neuroscience at Mayo Clinic College of Medicine in Jacksonville, Fla., and a former ALS Association Milton Safenowitz Postdoctoral Fellow. Having been personally touched by ALS, she is extremely dedicated to finding treatments and ultimately a cure for this devastating disease.
In general, people with disabilities are traveling more than ever, including those living with ALS. In response, the travel industry is paying greater attention to their special needs by providing more services and accommodations.
The clinical trial to test RNS60, a new compound for the treatment of ALS, which was supported in part from a $1.0 million grant through the ALS ACT initiative funded by The ALS Association and ALS Finding A Cure®, is now actively enrolling. This randomized placebo-controlled phase II study is being run by the IRCCS Mario Negri Institute for Pharmacological Research in Milan and the ALS Center of the Maggiore University Hospital in Novara Italy. We are happy to report that the first patient was dosed in mid-July 2017.
Last month, we were honored to be a part of the premier “Mr. Connolly Has ALS,” a new documentary following Gene Connolly in his final year as Concord High School Principal. The film exuded Mr. Connolly’s bright energy and love for life, despite his ALS diagnosis in 2014.
Meet Roger Craig, a three-time Super Bowl Champion and dear friend of Dwight Clark, who was recently diagnosed with ALS. Learn how Roger plans to support Dwight in his fight against ALS.
Thomas Todd is one of the hundreds of people living with ALS who was impacted by Hurricane Harvey. As Harvey approached, Thomas was able to safely ride out the storm with friends, but the hurricane had a devastating impact on his house. Harvey flooded his house with nearly two feet of water.
Meet Howard B. Levy, a highly accomplished certified public accountant with a national reputation and a long history of involvement with and support for The ALS Association. He learned of the Association during the mid-1980s during the last year of the life of his dear father, Jack Levy, who had ALS.