The ALS Disability Insurance Access Act went into law Tuesday, removing the 5-month delay for people with ALS to access the Social Security Disability benefits. This marks the culmination of a multi-year fight by ALS advocates across the country.
ALS did not stop in 2020 as the world turned its attention to the pandemic. So neither did we. We dug in our heels and adopted a “whatever it takes” mindset to accelerate research, to provide care to people living with ALS from coast to coast, and to advocate for legislation that empowers our community.
Back in 2000, when Veronique Belzil was working as a counselor in Canada, she found a new path after watching her husband’s uncle quickly succumb to ALS.