The ALS Association announced today that it has awarded a $620,000 grant to the Packard Center for ALS Research at Johns Hopkins to support the Answer ALS Data Portal. Launched in January this year, the Data Portal provides open access to the world’s most comprehensive collection of ALS data.
We talked with Dr. Janani Parameswaran, postdoctoral fellow from Dr. Jie Jiang’s lab at Emory University in Atlanta, to learn more about her and her ALS research focused on unraveling the underlying disease mechanism.
Le Bois Neurology in Meridian, Idaho provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
Dr. Heidi Tarr Henson, recently diagnosed with ALS, reflects on in-the-moment advocacy, teachable moments and the power of setting boundaries with ourselves and others.