The first one to show, the last one to go with smiles and laughs the whole way through. ALSA Wisconsin Chapter Volunteer Mike "Mr. Smiley" Howe, is our Hometown Hero this month.
My husband Russ and I were married in 1984 and were raising our boys Kyle and Dylan in the home Russ and my father had built together. Life was good. Until ALS upended everything.
Each member of the team at an ALS multidisciplinary clinic plays an important role in delivering critical care for people living with ALS and their families. Association-wide liaisons work closely with ALS clinics nationwide, ensuring each patient’s unique needs and wishes are being addressed throughout their journey living with ALS. We recently spoke with Suzanne Schrag, senior director of care services for The ALS Association Rocky Mountain Chapter, and clinic liaison to ALS multidisciplinary clinics across Colorado and Utah.
The HEALEY ALS Platform trial led by the Northeast ALS Consortium (NEALS) and the Healey & AMG Center for ALS at Massachusetts General Hospital is paving the way for rapid testing of potential treatments for people with amyotrophic lateral sclerosis (ALS), a neurodegenerative disease affecting the brain and spinal cord.
Laura Lambrecht never expected to lose her father, Mark, in the way she did two years ago. Mark suffered from ALS, or Lou Gehrig’s disease, a devastating nervous-system illness that slowly robs patients of their independence and ability to live a normal life. He passed away peacefully at home in January 2020, just a year after his diagnosis.
A paralyzed man has tweeted a message out to the world using his thoughts through a brain-computer interface. It's thought this is the first time a message has been successfully posted on social media directly using an implantable brain-computer interface.
President Joe Biden on Thursday signed into law bipartisan legislation that expands funding for amyotrophic lateral sclerosis research, hailing it as in "the spirit of the season."